Heartbreak on a beautiful day...
It was a beautiful day today. The sun was shining through and the air was warm. Sadly, we could not enjoy it.
Today we learned the news that changed our lives. According to an OHSU specialist and Eleanor and Quinn's attending physician - Dr. Rabin - the twins have an untreatable metabolic disorder that will eventually end their lives. Sadly, they are in perfect health, with the exception of their inability to metabolize a crucial protein that the body produces.
The doctor said they might survive as long as two years - but they will never awaken from their 'sleep'.
We are heartbroken.
After we received the news, Alex and I had a chance to hold the girls in our arms. Despite all the tubes and wires coming out of them, I could feel them move, breath and make small, infant noises.
I have never cried so hard in all of my life.
Today we learned the news that changed our lives. According to an OHSU specialist and Eleanor and Quinn's attending physician - Dr. Rabin - the twins have an untreatable metabolic disorder that will eventually end their lives. Sadly, they are in perfect health, with the exception of their inability to metabolize a crucial protein that the body produces.
The doctor said they might survive as long as two years - but they will never awaken from their 'sleep'.
We are heartbroken.
After we received the news, Alex and I had a chance to hold the girls in our arms. Despite all the tubes and wires coming out of them, I could feel them move, breath and make small, infant noises.
I have never cried so hard in all of my life.
12 Comments:
OH Greg, I'm so sorry to hear of your situation. You are all in my prayers. Such an issue is so hard to believe and understand. I hope and pray for a miracle for you and your precious little ones.
Love and prayers to all of you.
Kristi
By
Anonymous, at 5:04 AM
Greg, Alexis and family,
We are so sorry to hear the sad news about your sweet, little girls. You, and especially Eleanor and Quinn, are in our thoughts and prayers.
Irmgard & Martina (from Bridgeport)
By
Martina, at 8:37 AM
The pain of this is almost too much to bear.
Our hearts are, like yours, broken with grief over this news about the girls. We will continue to pray for a miracle for your precious little ones, and that you have the strength to bear this. Just be there for each other and Greer, draw strength from your family, and know that we and many others throughts and prayers are with you and the family...
The Kallems
Dan, Lisa and Kira
By
dkallem, at 12:14 PM
Greg and family,
Your cousin, Kristin, sent an email to our prayer group asking us to pray for you and your family. As part of your "prayer family", we write to tell you how heartbreaking it is to hear of your twins. We, along with many, many others are praying for a miracle for your girls. These are the times in life that don't make sense and are difficult to understand. May the Lord be with you and your family through this very trying time.
In Christ,
Kay, Barb, Billie (and many other PGE employees who care and are praying)
By
Anonymous, at 3:29 PM
As a father, I cannot even imagine the pain you and yours are enduring. Know that there are many of us out here who have shared, in some small way, the elation and grief of the past week through your blog. Hopefully, in some small way, we might also shoulder a bit of the burden.
peace to you and Alexis, and to Eleanor, Quinn and Greer.
By
greenInk, at 4:25 PM
Stephanie and I have you guys in our thoughts. Take care of eachother and stay strong.
- Adrian & Stephanie
By
Anonymous, at 4:46 PM
Dear Greg,
Just a note to let you know that I and my family are praying for you and your family. I can't believe how incrediably sad this is. Your girls are so sweet. In Christ Vicky
By
Anonymous, at 9:33 AM
Dear Greg, I am so sorry to hear about your sweet girls. Just know that I have everyone I know praying for miracle for them. In Chirst Vicky
By
Vicky, at 9:35 AM
My name is Jacqueline, I am the grandaughter of Laurel, she is friends with your parents (Greg's). I know it is kinda of confusing :). I have recently heard about your situation this morning and I am so sorry. I can not even begin to imagine the feelings you have but I do know that a lot of people are praying for you and your family. I am praying for a miracle for your beautiful children. I know that they are in God's hands and he will take care of them.
God Bless Your Family.
By
Jacqueline, at 10:01 AM
Dear Greg and Alex,
I wish I knew what to say. I want you to know you are in my constant prayers. I am so glad your Mom is there Greg she is one of the wisest woman I know. I will continue to pray for you Greer and all the hearts involved.
God Bless you with Peace and comfort.
PAula Fairclo
By
Paula Fairclo, at 10:34 AM
Dear Greg, Alex & family; May that sunshine day reappear & display rays of hope, trusting, & believing. Yes, These are very hard, trying times & hard to understand "Why me, God?" But HE IS GOD! He knows your broken hearts, your beautiful girls fighting to survive, your hearts desire to follow Him. You just keep holding closely, kissing & talking sweetly to those daughters of yours. They feel & hear everything. They w/know & remember the most tender touch and sound of their earthly parents. Can you have music in their rooms? When our granddaughter under 4 lbs. underwent heart surgery at 10 days old her nurses had music(Christian) we c/play for her when we had to leave the room. Music blesses the soul! These are very weary times on you as parents, too. Please take care yourselves & stay healthy. You are in our prayers. I love your website & your endless time keeping the latest news posted for us all to be updated. God bless you all - you have such a beautiful family!
Psalm 139,
Carolyn Sperry
(Calvary Baptist Church)
By
Anonymous, at 12:29 PM
Greg and Alexis, my thoughts and prayers, and love are with you, Greer, Eleanor and Quinn...loving all of you, holding you in community, crying with you...
Donna
By
Donna, at 1:34 PM
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