Our big weekend

Hello everyone.

The last couple of days have led us to make some terribly difficult decisions. After our meeting with the Hospice specialist on Thursday, a Genetic Counselor on Friday, and our loving pastor, Susan all throughout the process - Alexis and I have moved forward with a plan to release the girls from all their support systems and allow them to pass away naturally. It's the hardest choice we will probably ever make, but Alexis and I want them to be at peace and not suffer the seizures and physical decline that will accompany their disorder as they get older. Better that they rest in the arms of eternity and be free - than for us to hang on to them when there is no hope of recovery.

We have organized this weekend as a time for family and friends to say hello/goodbye to Eleanor and Quinn. We have small blocks of time reserved in the NICU for visitors on Saturday/Sunday - and will be celebrating their lives as we go. After everyone has had a chance to visit on Sunday, Alexis and I will dress them in the outfits they would have gone home in, and have some private time. After we are ready, we will have our immediate family join us - at which time we will take them off their ventilators and wait for them to pass into glory. While there is chance that they may hang on for a while, we expect that they will go quickly.

It has been a week of unbelieveable grief and heartache - and we can't see putting our family (and most importantly, Greer) through more than necessary - especially when Heaven awaits them.